Take action

Today, millions of Americans have a friend, neighbor, colleague, or family member who are one of the estimated 100,000 Americans living with Sickle Cell Disease (SCD).

But did you know that adults with SCD have a life expectancy decades behind their peers?

We can do better.

The National Academy of Medicine compiled the best ideas from some of the nation’s leading clinicians, researchers, and SCD experts in 2020 report. This report is a roadmap for common-sense changes that are long overdue.

Click here to view data on Medicaid beneficiaries with Sickle Cell Disease and Sickle Cell Trait by Congressional District. 

We are committed to turning these recommendations from experts into federal policy action inside Congress and the Biden Administration. Together, we can advance access to care and treatment, research and data, and resources for patients and caregivers who deal with this disease every day.

Join us in our efforts!