Take action

Today, millions of Americans have a friend, neighbor, colleague, or family member who are one of the estimated 100,000 Americans living with Sickle Cell Disease. The landmark 2020 report from the National Academies outlines recommended changes, and the Partnership is committed to translating those recommendations into federal policy action. Together, we can advance access to care and treatment, research and data, and resources for patients and caregivers who deal with this disease every day. Join us in our efforts to ask Congress to take action on Sickle Cell Disease legislation. After you’ve done that, here is a resource to give you more ideas about how to make your voice on this issue heard.