Media Center
WATCH VIDEO: First-Person Perspective: My Journey with SCD
Medicaid Beneficiaries with Sickle Cell Disease and Sickle Cell Trait by Congressional District
November 28, 2023
Statement for the Record on House Energy and Commerce Full Committee Markup
July 18, 2023
Statement for the Record on “Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases”
June 14, 2023
The Sickle Cell Disease Partnership Applauds Recently Introduced Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023
June 14, 2023
Sickle Cell Disease Partnership Supports Bipartisan Efforts to Advance the MVP Act (H.R. 2666)
May 16, 2023
Statement for the Record on “Examining Existing Federal Programs to Build a Stronger Health Workforce and Improve Primary Care”
April 18, 2023
150,000 Black Churches Ask President Biden for Support of the Sickle Cell Disease Comprehensive Care Act
November 2, 2022
Sickle Cell Disease Partnership Calls for Passage of Key Legislation
September 22, 2022
Partnership Releases Landscape Assessment of SCD Data Collection Efforts
July 12, 2022
SCDP Advisor, Dr. Brett Giroir, speaks to SiriusXM’s Doctor Radio
June 21, 2022
Rep. Charlie Crist Highlights the Sickle Cell Care Expansion Act (H.R.7177) on World Sickle Cell Day
June 19, 2022
Sickle Cell Disease Association of America President/CEO, Regina Hartfield, speaks to SiriusXM’s Joe Madison’s Urban View about the SCDP and World Sickle Cell Day
June 17, 2022
New Partnership Launches to Advance Access to Care and Treatment, Improve Outcomes for Individuals with Sickle Cell Disease
June 16, 2022
Sickle Cell Disease Partnership Call to Action
June 16, 2022