Media Center
WATCH VIDEO: First-Person Perspective: My Journey with SCD
Partnership’s Transition Letter to the Centers for Medicare and Medicaid Services
May 6, 2025
Understanding Sickle Cell Disease and the Value of Medicaid Coverage
March 26, 2025
2025 Federal Requests for Sickle Cell Disease
March 26, 2025
Partnership’s Transition Letter to the Trump Administration
January 22, 2025
Partnership Comment in response to HRSA’s RFI Regarding Sickle Cell Disease Programs
January 6, 2025
Partnership Statement on Sickle Cell Quality Measure Under Consideration by CMS
December 30, 2024
Partnership Statement on Complementary Pieces of Sickle Cell Disease Legislation
October 2, 2024
Progressing Forward: Improvements to Access to Care and Treatment for Persons with Sickle Cell Disease
June 19, 2024
Summary of NTAP Policy in CMS’s Proposed FY2025 IPPS Medicare Payment Rule
May 22, 2024
Partnership letter to CMS Innovation Center Director Liz Fowler regarding the first use of the Access Model to address Sickle Cell Disease
April 29, 2024
2024 “Medicaid & Sickle Cell Disease” – Findings From A Survey Of Medicaid Directors
April 23, 2024
Statement for the Record for the House Energy & Commerce Hearing on “Legislative Proposals to Support Patients with Rare Diseases”
February 29, 2024
Medicaid Beneficiaries with Sickle Cell Disease and Sickle Cell Trait by Congressional District
November 28, 2023
Partnership Letter to Congressional Appropriations Committees on FY 2024 SCD Funding
August 22, 2023
Statement for the Record on House Energy and Commerce Full Committee Markup
July 18, 2023
Statement for the Record on “Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases”
June 14, 2023
The Sickle Cell Disease Partnership Applauds Recently Introduced Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023
June 14, 2023
Sickle Cell Disease Partnership Supports Bipartisan Efforts to Advance the MVP Act (H.R. 2666)
May 16, 2023
Statement for the Record on “Examining Existing Federal Programs to Build a Stronger Health Workforce and Improve Primary Care”
April 18, 2023
150,000 Black Churches Ask President Biden for Support of the Sickle Cell Disease Comprehensive Care Act
November 2, 2022
Sickle Cell Disease Partnership Calls for Passage of Key Legislation
September 22, 2022
Partnership Releases Landscape Assessment of SCD Data Collection Efforts
July 12, 2022
SCDP Advisor, Dr. Brett Giroir, speaks to SiriusXM’s Doctor Radio
June 21, 2022
Rep. Charlie Crist Highlights the Sickle Cell Care Expansion Act (H.R.7177) on World Sickle Cell Day
June 19, 2022
Sickle Cell Disease Association of America President/CEO, Regina Hartfield, speaks to SiriusXM’s Joe Madison’s Urban View about the SCDP and World Sickle Cell Day
June 17, 2022
New Partnership Launches to Advance Access to Care and Treatment, Improve Outcomes for Individuals with Sickle Cell Disease
June 16, 2022
Sickle Cell Disease Partnership Call to Action
June 16, 2022