Media Center

WATCH VIDEO: First-Person Perspective: My Journey with SCD

2024 “Medicaid & Sickle Cell Disease” – Findings From A Survey Of Medicaid Directors

April 23, 2024

Statement for the Record for the House Energy & Commerce Hearing on “Legislative Proposals to Support Patients with Rare Diseases”

February 29, 2024

Medicaid Beneficiaries with Sickle Cell Disease and Sickle Cell Trait by Congressional District

November 28, 2023

Statement for the Record on House Energy and Commerce Full Committee Markup

July 18, 2023

Statement for the Record on “Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases”

June 14, 2023

The Sickle Cell Disease Partnership Applauds Recently Introduced Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023

June 14, 2023

Sickle Cell Disease Partnership Supports Bipartisan Efforts to Advance the MVP Act (H.R. 2666)

May 16, 2023

Statement for the Record on “Examining Existing Federal Programs to Build a Stronger Health Workforce and Improve Primary Care”

April 18, 2023

150,000 Black Churches Ask President Biden for Support of the Sickle Cell Disease Comprehensive Care Act

November 2, 2022

Sickle Cell Disease Partnership Calls for Passage of Key Legislation

September 22, 2022

Partnership Releases Landscape Assessment of SCD Data Collection Efforts

July 12, 2022

SCDP Advisor, Dr. Brett Giroir, speaks to SiriusXM’s Doctor Radio

June 21, 2022

Rep. Charlie Crist  Highlights the Sickle Cell Care Expansion Act (H.R.7177) on World Sickle Cell Day

June 19, 2022

Sickle Cell Disease Association of America President/CEO, Regina Hartfield, speaks to SiriusXM’s Joe Madison’s Urban View about the SCDP and World Sickle Cell Day

June 17, 2022

New Partnership Launches to Advance Access to Care and Treatment, Improve Outcomes for Individuals with Sickle Cell Disease

June 16, 2022

Sickle Cell Disease Partnership Call to Action

June 16, 2022